Jackie Robinson Day....

I am tired of being tired....

Melissa still loves my sense of humor, although maybe she is just playing with me.  When I told her “I am tired of being tired”, she smiled.  Communication at this point in time is really tough and at times frustrating.  Hand signals and mouthing words are not easy to interpret or discern.  Although today I was there when the Speech Therapist switched out her “gearing” and I heard her talk, albeit much like she had inhaled helium.  No matter is was the finest melody I have heard in some time.  The therapist asked her who I was and she thought and said,”Mr. Potter.” (Not the banker in “It’s a Wonderful Life” BTW)

M is in and out of confusion when it deals with memory and details.  This is to be expected. She did draw me a map of something or maybe it was a revision for 130K that someone needed to draft.  Her drawing was wonderful, but I had no idea what it represented.  Arrows, lines and circles with annotations; very rough but what does this say or mean.  Her writing is in cursive, and very small.  Cursive; wow, I thought it would be easier to write in standard drafts person AWL CAPS.  It is very noticeable that she has a eye/hand coordination deficit. But that is nothing new to her, she said she wasn’t good at that anyway.  Have you seen her play tennis lately?  Actually she is better than me, but I am better at “Tidily Winks”.(showing my age). AWL these things can be recalibrated, not a problem, but in time and when the brain is ready.  Remember “Hal” in “2001 Space Odyssey” was running the show and right now Melissa’s body is receiving signals from a computer that is rebooting/repairing.  Stay tuned....

She had a good Physical Therapy Session today.  She was learning to sit up erect without assist and marching in place to get those upper quads activated.  She has homework while she is lying in bed to flex her feet and move her arms—activate those muscles who have been on vacation.  AWL in AWL I am very pleased with the determination of the Care Team and Melissa’s willingness to engage.  The people every level of care, the people in the trenches so to speak, don’t get paid enough for what they do to get you healed.  Ready to re-enter our laser paced world.  I am humbled by their dedication and compassion.  

*finally got the tangles out of her hair, she has pigtails now, cute—not fashionable, but cute. 

**She is still planning her escape from Stalag 17

***It is day 42 by the way—I can be cryptic